Originally Posted by
Prettymaid
I looked back to see when I last posted about my BIL, Chuck, and was surprised to see that it was the end of June. If you recall, Chuck has ALS and in that post in June I said that he was winding down. At the time I certainly didn't think that he would still be with us now, but he is.
Since June Chuck has declined even further. I don't think we thought that was possible. He's in constant pain. Yesterday when I came home for lunch Hubby was here and told me that he had received a call from his mom saying that hospice had advised Chuck's wife to give him a medication so strong that it would essentially render him unconscious, thus pain free. He's already on so many medications, only his wife and his mom can keep track of them all. He is given morphine every 2 hours and a morphine patch also, but lately even that doesn't take away his pain.
We will be going to see Chuck this evening. He's to the point now, though, that he's so drugged up he either doesn't know anyone or doesn't remember them being there. You can imagine the toll this is taking on my husband and the rest of the family. It's funny how you progress through stages; first of denial, to just being there for him and letting him know you love him, to simply wishing he would be put out of his misery. This disease does not effect the mind. Chuck has always been in there until recently. Now he's on so much medication he's like an empty shell. Nobody should have to suffer like this.